Logan is down in North Carolina for the week. I will be going down on Thursday night to meet with his transplant doctor, Dr. Prasad, on Friday. But, I got some info on what happened today.
All that really happened was that they did something along the lines of a nerve-function test. They did this on his hands to determine any potential carpal tunnel syndrome that he may be developing. Apparently, the boy didn’t like it and essentially had to be held down … which probably didn’t make things much better.
No results were really given (as in, what the person doing the testing saw as good or bad) so we will most likely get the results on Friday. Though, a nerve-function test was never done in any of the other post-transplant checkups … so I’m not sure if this is new to the general testing for Hurler’s kids, or if this was specifically ordered.
That was his only appointment for today. Tomorrow will probably have a bunch of more testing – including an appointment with Dr. Fitch, who is the pediatric orthopedic doctor down there. He’ll be the one looking at his knees, curled fingers and curved back – so it’s kind of a big deal for us. If anything will need to be done or suggested, the doctor will probably let them know – and then the results will be sent for Dr. Prasad to see and discuss with us on Friday as well.
He has adapted to staying in a hotel quite well. Despite asking to go home after getting off the plane while heading to the hotel, he crashed from roughly midnight until 10 a.m., and even then he had to be woken up. Generally, with his sleeping issues, we don’t like to “stir the pot,” so to speak – so putting him in an environment that he isn’t used to makes us worry that it may screw up his sleeping schedule or keep him up all night … but apparently everything went fine.