So, on Tuesday, the appointment with the bone doctor didn’t actually happen – it was this morning. Luckily, the curve of his spine hasn’t gotten any worse, I guess it just looks like it has – but for the time being they will leave it alone and may address it down the line. His knees are still in good shape, but they think they will need to be stapled down the line (common for kids with Hurler’s) and for the curled fingers, occupational therapy was suggested.
Otherwise, it was mainly routine things that happened today – he had an MRI today and I believe he got his behavior evaluated, so hopefully some good news comes out of that. Tomorrow at around 3, I will be taking off for North Carolina, so I wouldn’t expect a big update on what happened tomorrow unless I choose to do that over my phone.
But Friday evening I plan on making the big post, where all of this results are given by his transplant doctor. The only thing we won’t know are his T-Cell count, which tells us the percentage of donor cells in his body – we’ll find that out within the next few weeks.
Good going, Logan. We love you.