If you are reading this, then chances are you are either related to Logan or are in the same scenario that we were in roughly 3 years ago (as of this posting), either wondering if there’s anything you can do for your child with MPS or are getting ready to go through the transplant process with your child.
This site was originally created as an online journal to help keep family and friends up to date on Logan’s process as he went through an umbilical cord blood transplant to help stop the effects of Hurler’s Syndrome. Luckily, things have gone very well with his progress and the need to update this site has drawn to a close.
So, in order to help possibly educate parents who are going through the same thing, I have kept this site up as an archive of sorts – and to let them know what we went through when my son went through his transplant. Believe it or not, but the theory that there IS a fix for Hurler’s Syndrome isn’t common knowledge. So, if you were told that there is nothing you can do for your child, they are mistaken – an umbilical cord blood transplant will stop the effects of Hurler’s and (outside of bone damage) could possibly reverse it.
While most posts will be “written” by me, they were actually written by my ex-wife, unless there is a specific mention of me writing it. The site structure, updates and media is done by me, so drop me a message if something doesn’t appear to work correctly.